Tuesday, March 15, 2016

Vacation 2016 - Channelling Our Inner Child

I'm a big believer in taking a vacation. Whether it's simply staying home or going some where you've alway dreamt of. Taking time to for ourselves and our relationships are so important.

Last October, hubby and I discussed doing just that. We were torn between two different destinations; Costa Rica and Atlantis at Paradise Island Bahamas. We eventually settled on Atlantis. Our reasoning was that we aren't getting any younger. So, we clicked the "book" button for a Bahamian getaway in March 2016.

Fast forward.

We are back from our Atlantis vacation We had a great time. We were able to be kids again We were thrilled by the ability to channel our adolescence side. We spend our time exploring the marine animals, all 22,000+ species of them and the AquaAdventure park.

I love just going, seeing, doing and adventuring. I guess you'd say I'm pretty easy to please. Channelling my inner child was more fun than I thought it would. Being a serious adult has become so ingrained in me that sometimes I forget how to have fun.


I'm so blessed to have husband who works his tush off so we can have amazing experiences in life together. He's so amazing. Seriously!

We have a fabulous time. I don't know how many times he/we did the slides or river but I can tell you it was fun - even for 30+ somethings as ourselves.

Many of the rides allowed double inner-tubes. We took full advantage of the rides let us go together.  When we wanted a little R&R we simply found a lounge chair and basked in the sunshine. But that was second to the rides...

All-in-all we had a great time and wished we were still there or at the very least brought the sunshine back to Oregon with us.


Thursday, March 10, 2016

Inflammatory Polyarthritis

The past few months have been brutal on the health front. After my December hospitalization and subsequent battle with the serum sickness/sensitivity I never have felt quite back to normal. My joints have been very painful, which have required 3 rounds of prednisone and pain medication for the break-through pain. 

Last month I saw a Rhuematologist who has diagnosed me with Inflammatory Polyarthritis. Which is becoming more frequent in adults with CF. Yay, more fun! I started on a new medication in conjunction with the prednisone as it takes a few months for the new medication to build up in ones system to be fully effective. 

Can I just tell you how much I hate prednisone. I hate the mood swings. I hate the spiked blood sugars. I hate the insomnia. I just simply, plainly hate it. 

I really hope this new medication does it and I can say adios to the prednisone induced cray-cray. 

So, now I'm on a journey called Inflammatory Polyarthritis. Having an autoimmune disease on top of the CF, diabetes, along with the other diagnoses feels so overwhelming. However, I'm doing as much research as I can on it so I can be informed and hopefully make choices that aid in reducing the inflammation.  

Interestingly enough arthritis in the CF population is large enough to have it's own diagnosed "Cystic Fibrosis Related Arthritis" or CFRA. Aren't we special? HA!

Due to all this inflammation and painful episodes I haven't been running. I didn't want to aggravate any joints or bones while we are trying to figure out a treatment plan. I'm hoping that once I begin to transition off the prednisone and let the new medication to it's job I'll be able to lay some rubber.

Here's to hoping!

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